Monday, September 28, 2009
Friday, September 25, 2009
Monday, September 21, 2009
Swim lessons
The amount of effort it takes for a 30 minute swim "lesson" is crazy. Packing, getting into suits, participating in songs and swim for 2 back to back classes, showering off, putting on jammies, eating snack and getting home takes a good 2 hours. It is fun to see them enjoy the water so I guess it's worth it but man are we exhausted.
Sunday, September 20, 2009
Wednesday, September 16, 2009
Buzz and Woody
Sunday, September 13, 2009
Saturday, September 12, 2009
Friday, September 11, 2009
Nothing too exciting to report. Luca had his follow up appoitnment, still awaing one lab result and if that result is negative then we're blaming it all on bad luck. A little frustrating to not know what's causing these infections but better than some icky diagnosis. Ava had her three year old appointment today, she threw a total fit about stepping on the scale to be weighed but didn't make a peep at the flu shot. Strange child.
The picture is from the Union terrace. Ava was very well behaved (minus the temper tantrum in the public bathroom), Luca on the other hand enjoyed throwing rocks at the ducks and sucking on cigarette butts. And we wonder why the boy gets sick.
Wednesday, September 9, 2009
Monday, September 7, 2009
Sunday, September 6, 2009
Bad news
We were hoping to be able to go home today and do 2 days of IV antibiotics at home with Luca's PICC line in place but I guess that was too difficult to arrange on the Sunday of a holiday weekend. So, we're here again tonight and will talk with the docs again in the morning to come up with a plan. Bummer.
Good news is that Luca has been super happy today. He got to play with lots of family this morning (cousin Joe in picture above) and was non stop giggles with Ava. Our wonderful nurse said we can take Luca outside for a stroller ride and to run around when he is up from his nap so at least that will break up our afternoon and allow us all some fresh air.
Home???
We're waiting for the attending MD to come see Luca and talk about the plan.
Cross your fingers.
Saturday, September 5, 2009
Calm Night
With the exception of an occasional beeping IV pump we slept! No one came in to wake Luca up for a thing, it was wonderful. This morning he was super excited for pancakes and eggs and a few cartoons. We cruised the halls in a little car and said "hi" to all the nurses. One of the ENT docs came by to pull part of the neck drain out; Luca was not a big fan of that. Hopefully the whole thing will come out tomorrow morning. We're waiting for the infectious disease doctor to round on Luca since he is the one who will make the big decisions. Still waiting on test results. Waiting sucks. Big sister Ava is coming to visit soon. Dustin and I both miss her tons after just two days in the hospital. We'll probably start sending one of us home with her at night once the grandmas and grandpas are off duty. What would we do without family. Thank you to everyone who has called, sent emails and volunteered to help out in whatever way you can...we love you!
Friday, September 4, 2009
Now that that's over, we wait.
This is the face of a happy boy who after 24 hours without a bite to eat or drop to drink was FINALLY allowed to chow down. Yay!
According to the ENT doctors everything went fine in the OR. They were able to clean out the abcess and collect some pus to test for all kinds of gross things. There are a few stitches in the incision and a small piece of gauze that drains excess "gunk" from inside onto the big gauze dressing around his neck. . Sort of gross but if it works we like the gross drain.
Mema, Papa and big sister Ava came to visit while Luca was still asleep. Ava had a lot of questions about his face and IVand just being in the hosapital in general but didn't seem to freaked out. I think it it will be better tomorrow when she can come and see Luca up and playing. It took him a long time to fully wake up but when he did and realized that he was able to eat he was a new boy from the grumpy starved toddler we had all day. It has been a long day. Right now we just have to wait for the cultures to come back and also do some more blood tests to check for a few other possibilities to explain what's going on.
Night night!
A long long night
Last night really sucked. Luca got his first traumatic IV placed around midnight and then it came out around 1:30. We got another one in him sometime in the middle of the night. Another big super sucky event. Our CT got postponed because he couldn't hold still and since it wasn't an emergency they didn't want to sedate him in the middle of the night. This morning he was doing ok, cranky but he hasn't had anything to eat or drink since 6pm yesterday. Another big time sucks in Luca's world. This morning after almost losing IV #2 we were able to sedate him for his CT scan. The wonderful nurses in the sedation clinic sang Twinkle Twinkle Little Star and the Itsy Bitsy Spider to him to calm him while they put the good drugs in. He did great. I got a little teary eyed seeing him laying there sedated but he was calm and looked pretty peaceful. Once sedated he got IV #3 put in since the last one wasn't working well and is currently having a PICC line placed. (an IV for longer term use) He'll need to have an x-ray to make sure it's in the right spot. I'm hoping that by the time the PICC is in we'll have a report from the CT scan and know whether or not he needs surgery to drain the area. That would be the biggest sucks in the chain of sucky things happening. Waiting, waiting, waiting...
Thursday, September 3, 2009
Here we go again
We tried 4 days of oral antibiotics for another infected lymph node; this time under Luca's jaw. It seemed to be improving but then came back with a vengance. It is huge, red and very tender to touch. After an early evening appointment with an infectious disease doctor we are now admitted to UW Children's Hospital and waiting to find out what is going to happen. So far we know that he will need and IV and a CT scan. We're ohping he can do the CT scan without having to be sedated. Depending on what the CT shows he will either try a course of IV antibiotics and hope it clears up or will need surgery to drain the area and culture the stuff inside. No fun at all...poor boy. They said to expect 3-7 days in the hospital. Besides being a little irritable
he is doing great, as long as you stay away from his face. He is sleeping on Dustin right now who is also dozing. I may take a little nap too until the docs come back in.
This sucks.
Subscribe to:
Posts (Atom)